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Q |​ What rights do I have to make my own medical decisions when I am unwell?
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You have the right to make your own medical decisions when you’re unwell if both of the following are true:
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You have decision-making capacity, which is when you are able to give informed consent and to understand the benefits and risks of a proposed treatment or intervention (including no treatment). Lack of decision-making capacity is determined by a healthcare provider.
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You have competence to make medical decisions, which is when you are able to participate in legal proceedings or to be responsible for your own decisions or actions. Lack of competence is determined by a court.
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Q |​ Who has the right to make medical decisions for me if I become unable?
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If you become unable to make medical decisions, your healthcare proxy, a legal guardian, or your next of kin may be called upon to make medical decisions on your behalf. If you do not have a healthcare proxy or legal guardian, your next of kin will act as your medical decision-maker. If you do not want your next of kin making decisions on your behalf, be sure to name a healthcare proxy. See the Healthcare Proxy tab on the My Plans page for more information.
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Q |​ Do I have the right to document decisions about my medical care?
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Yes. According to the Patient Self Determination Act (PDSA) of 1990→, hospitals, skilled nursing facilities, hospice organizations, home health organizations, and health maintenance organizations (HMO's) are required to:
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Inform you of your right as a patient to be involved in making decisions about the medical care you receive.
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Ask you about advance directives and document any wishes you might have about the care you want or do not want.
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Prohibit discrimination by any healthcare organization against you documenting an advance directive.
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The PDSA is intended to empower you to play a role in making choices about your care during a serious illness.
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Teoli D, Ghassemzadeh S. Patient Self-Determination Act. [Updated 2023 Aug 28]. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2025 Jan-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK538297/
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Q |​ Do I need a lawyer to complete an advance directive or healthcare power of attorney?
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Not necessarily. In most cases, you can complete the advance directive form yourself. You will then have to request witness signatures and get the form notarized, depending on your state. You may consult with a lawyer to help you document specific wishes for your care that are not included in the advance directive form itself.
Sources
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Teoli D, Ghassemzadeh S. Patient Self-Determination Act. [Updated 2023 Aug 28]. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2025 Jan-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK538297/
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Resources
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Information about Advance Directives and Healthcare Power of Attorney→ from the National Institute on Aging
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Life Planning Documents for Transgender Communities→ from the Transgender Law Center
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